I havent written for awhile. Have had ups and downs, but with current medical etc, it seems a good time to get caught up.
I have spent the last 2 days with lots of dr appts. I had both main dr offices order all of my big labs. I am still waiting for several results for one office. All of my oncology labs came back today.
Today I met my new oncologist. She was very nice. At first I worried we would spend the whole appt going over old stuff. Turns out going over old stuff was really important. She was very thorough and made sure that I understood all of her instructions. She even made a specific list of things I need to work on and things they will take care of...So for my appt today.....
Confirmed UTI # I have lost track...Trying a new antibiotic, so will see how that goes
All of my cancer markers and labs came back stable. My blood calcium level came back way too high. Not sure of the cause since I am getting tons of fluids already and not taking any supplements. Only way to help my numbers drop back to safe is getting my bone protector injection and IV fluids. Thankfully I have wonderful infusion nurses and they took really good care of me.
Because calcium levels are too high, and I havent had any imaging in last 6 months, I am being scheduled for another CT and a bone scan. Dr office is hoping to schedule those together. It will make for a very long day, but hopefully will give us some good answers.
My dr has taken me OFF of tamoxifen! Totally different thought process/perspective - "If you have been on it all these years, and the cancer came back, then why continue with it? It is obviously not working." We are replacing it with another med similar to tamoxifen, but mostly for postmenopausal women (which technically I am) and esp since I no longer have my ovaries.
We talked in some detail about my chemo and whether to continue. She was pretty adamant that I need to work through the hard stuff and stick with it because my labs show that it is working, and hopefully still making a difference. We talked about my biggest concerns, most difficult side effects. Not really anything to do to relieve them. Hopefully going off the tamoxifen completely will resolve my vision concerns and some of my monster brain fog. I will stay on chemo through this whole cycle and probably the next one, knowing we will discuss imaging and make any changes once we are to that point.
I think that covers things for now. I will be sure to post my other lab results as soon as I have them back. Thanx for sticking with us!
