This week was pretty rough on Rory. After last week being OFF from chemo but still really difficult, we had high hopes that this week would be better. Not so, unfortunately.
Tuesday was her Faslodex injection, and she actually drove herself. I was a bit surprised to hear that they didn't do a blood sample, as I was expecting them to be closely monitoring the cancer antigen (CA) results. Tuesday was also Christmas Eve, meaning we got Kaeli back. Our traditional PJ Hunt took place downstairs so Rory wouldn't have to go up and down the stairs, and it worked out pretty good. Ah, memories. We couldn't find our nativity costumes (I think they got combined with my parents') so we opted for watching the nativity story online rather than acting it out.
Christmas Day we were all together, which was great! Rory came to Star Wars with us, although I think she might have slept through parts of the show. :+) Her energy has been much lower than we all hoped for.
By Friday she finally admitted to me that she's been in some pretty significant pain for several days. At first she thought it might be because we switched sides of the bed? Even though it was Kevin's day off, and it was pretty late into the afternoon, she relented and tried to contact him about the pain. He went ahead and raised her Fentanyl prescription from 50 to 75. We got that picked up and in place Saturday.
By Sunday afternoon Rory confirmed that her pain was much better. It was a bit of a struggle to get her to wake up and sit up long enough to eat when her sugars got low (like, 50's) but as a team we got those back up over 100. Hopefully the team will be vigilant while I'm back at work.
We don't have any medical appointments scheduled for this coming week, but the social worker is scheduled for Friday to come and talk through things with the kids. There are several outings planned (hockey, movie) so we'll see how Rory's energy and pain levels go. Will be nice to have almost another week without school pressures, as our kids don't return until Thursday.
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