Tuesday, February 4, 2020

At the Non-Amusement Park

So another change of plans ... during the hospice evaluation meeting last night, Rory was suddenly able to speak enough to participate for a few minutes. We decided to try one more time to make contact with oncology and inquire about moving her PET and CT scans up in the schedule, and use those results to inform a plan forward. I talked with an on-call doctor last night and he agreed that would be the best plan. Heard from the office's lead nurse who is putting things into motion now.

The hospice nurse who did the evaluation said that Rory does seem to be at a level of disease progression that would qualify and warrant hospice in her opinion, but she and all of us agreed that getting this scan could give us some much-needed information and ensure whatever decision is well-grounded and supported by physiological testing and results if possible.

Those of you who were on this "ride" with us eight years ago will recognize the dramatic up-and-down, rollercoaster-like swings of plans, emotions, energy, etc.

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