Well, I served up curve balls again today. All my symptoms plus extras threw PA for a loop. There are big concerns from Dr and PA that side effects have been so bad. One side effect that has really had me down may not be a side effect at all, but a concern with my spine/back. PA did a quick exam and when she hit a couple places on my back I about jumped off the table. Not sure what the plan will be though. Talked about estrogen suppressant surgery options. If I do go in to have ovaries and tubes taken out, would be multiple day hospital stay and 6 weeks totally down - cutting through abdomen, uterine area - would be just like having another C Sect. That was not fun the 1st time, would take some very big planning to try to figure out if I was down because of surgery and cancer etc. My heart rate was too high again today too.....sigh...like I said, lots of curve balls.....
So - here is the scoop for next 2 weeks. Still NO chemo, NO tamoxifen. Next appt on 18th will determine if injections are also put on hold again, whether I will start chemo, and big discussion about possible surgery to replace injections. On a good note, labs came back with good #'s, so they are happy about that not being out of control too. Too bad that my #'s dont reflect how I am really doing. Will be glad for one thing that is solid.
I am extra thankful for friends today. A special someone to drive and a special someone to take the kids. Little peeps were happy where they were, and I got some adult talk time. So thankful to those who give so much to help me and our family. The not driving thing has really been a huge struggle for me. I am grateful to those willing to serve our family.
Will post again in a couple of weeks. Thanx for staying tuned....
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