Tuesday, August 2, 2016

Tackled & Smashed

Last several days have had struggles,  but had some normal activity level.

I wonder if I do too much when I feel ok and then it catches up with me.....(crazy that folding laundry and repairing broken books is too much) I haven't actually been tackled by a football team, but today I can imagine what it feels like to have that happen.

A couple of updates from after my actual appts.  I have been having unusually high heart rate. My tremors have been so bad that I can hardly hold anything sometimes.   Have been told to go ahead and restart a med I haven't been on for awhile. Hopefully it will help with both. My hair is falling out in broken pieces. Not tons, just enough to notice a difference. 

Interesting info. When I began the injections and chemo, days 4-7 had me totally flat down in bed, literally. I was so sick. This time I only had the injections, and day 3-6 has shown similar side effects - including having my kidneys freaking out and super uncomfy joint pain. Good to know it is one or both of the injections that are causing those side effects. Can only imagine chemo on top of that, would have been totally down again. Good to know that we are seeing a pattern emerge already, that will help tons.

My dr MA called this morning to check on me. I talked with her about everything that has happened over the weekend. She is checking with my dr to see if there are any other helps for things that are a huge struggle. Also, found out my dr doesnt want to wait until the end of the week for labs to be done. Apparently there is a guy who has a mobile lab and he travels to patients vs patients having to make long drives to the dr office - pretty cool. He is coming today to do my labs for the oncology team and for my dr. Several sets again. Hopefully, doing it this way will have results in the hands of my dr tomorrow while she is in the office. Labs will determine whether I am still in a rest window, or if I will be able to start chemo and be out and about (as I feel up to it)

I will send another update once we have lab results back. Will see where we go after that.

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