Dizzy yet?

Getting dizzy from this ride? I think I am.

Tuesday Rory said was a REALLY good day. She felt good, no pain, had energy. She spent most of the day with the kids, had an in-home visit from a good friend, and probably more that I'm forgetting. Since this is her "OFF" week from chemo, that was certainly something we all hoped to see more of this week. However, Wednesday was a half-way good day - I figured after such a GREAT day on Tuesday, maybe she had over-done it and was worn out? By Thursday it was a NO GOOD day again, mostly due to a raging headache accompanied by extreme fatigue and nausea again. Hoping for another upward trend?

Thursday we also met with the Palliative Care team again. Kevin in particular speaks to Rory exactly the way she needs. He listens, responds in a way that proves he's hearing and understanding and incorporating what she tells him, and she really appreciates that. So even on a day like yesterday that was so crummy, she always feels better after consulting with that team. The result of that consult is we're trying a different medication for the nausea, and by mid-day Friday Rory said it was much better. So write that one down as a "win." They still aren't ready to start tapering off from the heavy-duty pain meds, though, so we'll probably keep dealing with fatigue issues.

Another struggle is that nothing seems to taste good to her right now. That of course leads to low blood sugars which could be contributing to both the headaches and nausea. Very hard to "just eat" when anything and everything is gross, and when she feels like (and sometimes does) she's just going to throw it all up anyway. But hopefully that will improve for her over time.

This afternoon was another seizure spell, probably the first one since the day after we got home from the hospital. I recently got a couple more Amazon "Dot" devices, specifically so we have one near Rory and another one in my office. So today I was talking my dad and Kaeli through what to do and say for Rory, based on what I observed from the nurses. It took a few minutes, but she came back around eventually and was back to normal. As usual, she didn't remember what had happened. This time she called just before it started and told me she felt like what it felt like last week, but that she wasn't shaking, which was odd. And then she had the episode. So maybe we'll get some warning before they happen? As a reminder, the doctors concluded these seizures aren't epileptic, meaning they aren't medically dangerous. Although that's reassuring on some level, they sure are scary for her and for us, though!

Keeping our fingers cross that Rory is able to go with us to Cross-E Ranch tomorrow. She really enjoyed going last year after having it recommended, and she is looking forward to it being an annual family pumpkin patch tradition.