After arriving at drill tonight Rory called to say she was heading to the ER. Much of the afternoon she had been experiencing tremors, more than usual, and at times she couldn’t get her computer mouse to do what she wanted. Her hand would periodically spasm, and she was having some difficulty speaking. After talking to a nurse over the phone they decided that going to the ER was warranted. Maybe it was a reaction to some of the new medication? Or maybe something else? After living with cancer for the past 8 years, a little trip to the ER wasn’t all that worrisome. Maybe we are just de-sensitized. Kaeli planned to take Rory to the hospital and I planned to stay at drill.
It was only a few minutes later that I got a frantic call from Kaeli saying, “You need to be here NOW.” I drove across the valley to find a party going on in room 9. The story eventually came out. After walking into the ER on her own, apparently Rory had some difficulty during checkin. The doctors described trembling as “partial seizures” because she had responsive eyes and was able to speak again almost immediately after the tremor stopped. Also before I arrived they did a brain CT.
They had several staff come in and check whether they could start an IV, but eventually decided to call in the specialist with the ultrasound machine. The parade continued with doctors coming in to tell us that they had consulted with the on call oncologist who didn’t think the medications were causing the tremors, so they thought it must be a neurological issue. THAT meant she would be transported to and admitted at the big hospital in Murray where the IMC neurological specialists are located. While all this was going on the IV nurse was prepping, until a much more seizure happened. This time the doctors came in to observe, and they agreed that one was a “real seizure.”
Eventually they got all the fluids they wanted to start some testing, and the transport ambulance arrived to take her away. I went back home to change clothes, gather some items that Rory wanted (especially her pillow), and talk to the kids about what was going on. Then it was off to the hospital.
We are on the 14th floor and it looks like we will have a great view in the morning. I talked to the doctor for just a minute to describe the episodes at Alta View, and she told me that the initial CT looked really good. As I am writing this there are a couple of techs gluing electrodes to Rory’s head which will monitor brain waves (EEG) for at least the next 24 hours. Odd to think that we hope she has another seizure so they can record it. The techs have really got Rory talking about the kids, we are sharing photos of the grand babies, talking school and music, and more. All while they are using some VERY nasty-smelling glue to affix the EEG equipment.
Might have another update shortly, but I want to pause here to email the blog link out to everyone with at least this much info.
I'm so sorry. I hope they have some answers for you soon. What is needed to help your family?
ReplyDeleteSounds like we'll be moving on about the same as before, juggling appointments and events and kids' lessons.
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