Whatta Week

Report from Rory this week: "Colton is turning into an amazing 'helicopter parent.'" Since witnessing last week's episode, he's been the one to literally hover over her, checking on her often and making sure she's on her medications schedule. I guess having a strong need for having and keeping a schedule is coming in as useful! We loaded up the Alexa devices with reminders for many things, including Rory's medications, and all of the kids are very good to drop whatever they are doing to make sure she has water, meds, snack, and whatever else she needs.

Monday I attended her regular Dr appointment with her primary care physician. Mostly Dr. Schaplow is the manager of all the other specialists, but she's really good to listen to all of what's going on and offer her support and ideas. For better or worse, Rory had another seizure right there during the appointment. We think maybe all the rapid-fire discussion of all the things going on might have triggered that place of stress in her brain at that very moment. She is going to look into the possibility of Tricare covering some visits to their newly-arrived therapist to try to figure out more of those stress triggers and hopefully set up some safeguards.

This was week 1 again of the next round of chemo. Sounds like Rory was mostly "down" with some brief slivers of light. Thankfully some members of the ward were happy to step in and help with visits, drivers for Kylan, and other pick-me-ups, especially while my parents were out of town.

Saturday the ward sponsored a community "Fall Festival" complete with carnival-type games for the kids. Rory decided last-minute that she had enough energy to give it a try, and she came home both thrilled at the chance to visit with so many people, and thoroughly exhausted after visiting with so many people. Was the best kind of therapy to exchange hugs with people she hadn't seen for way too long.

Yesterday we kind of had to boss her to get up and eat after we found her blood sugars back down into the 40's. (Doctor says anything below 100 is considered "Go Time" for food intervention.) We'll probably have to move up her Sunday morning 9:00 levels checks, medications and breakfast since the rest of us all leave before 8:30 and she apparently will choose sleep over snacks. Hey, if we're learning something new each week to make things work better, that's progress, right?

Got another week full of appointments and events. Hoping to keep that positive momentum going.